Since last December, it’s been lurking in the background. And elephant in the room that I am always conscious of, but that others might not even notice. One which is no end of frustration, especially when it comes to shoe shopping.
Yes, shoe shopping.
You see, I have an invisible illness. I guess I didn’t even realize that until a few weeks ago. But if you meet me, you won’t know that anything is “wrong” with me. I seem normal.
In reality, I have a form of Muscular Dystrophy called Charcot Marie Tooth Disease (CMT). My teeth are fine, but my legs aren’t. I have decreased sensation and muscle mass, and it’s degenerative. In normal people terms, I walk funny and it won’t get better. 🙂
Some days, it’s hard. I can’t easily squat down on my knees, but my job requires it. I can’t run or walk long distances. And I wear leg braces.
Which brings me back to the shoe shopping. Do you know how hard it is find show that fit a custom insert and leg brace footplate?
Anyways, I’ve been hiding this invisible illness as much as possible. Long pants and bulky shoes. It’s easier than dealing with the questions and stares. But you know what?
I’m ready for something different. I’m ready to #baremybrace and start sharing a little bit about this invisible illness. Just because I wear bit of
metal carbon fiber on my legs and walk a little funny doesn’t mean I can’t do what I want to do, and I’m ready to tell you that.
Talking about it means I can share what life’s like in my shoes (no pun intended). I’ve had 9 months to process what my new “normal” would be, and now I’m ready to share.
Because, really, I’m not all that different than you. I just have some fancier leg decorations. 🙂
Also, it’s invisible illness week, and I chose to write (really for the first time) on my experiences with an invisible illness. Check it out here!